SXSW 2024

Long COVID: learning from patients + looking at what's next

Description:

We will explore the state of Long COVID today—addressing the growing market developing therapeutics and tools, the status of the Long COVID advocacy movement, and what we can learn from HIV/AIDS. We will consider the accommodations and benefits the ~65M people living with Long COVID need to survive and thrive, and the importance of deferring to “long-haulers” when designing policies and support. We will also touch on barriers to accessing care, with a focus on marginalized populations, including low-income people, BIPOC, and LGBTQ+ folks, and the debated appropriateness of the term “patient.”


Related Media

Other Resources / Information


Takeaways

  1. The importance of centering lived experience / patient expertise in the growing Long COVID "market" — for researchers, apps, pharma, media and more.
  2. Understanding post-viral diseases, dynamic and/or invisible disabilities and best practices for accommodations and supports—in the workplace + beyond.
  3. How models of patient involvement, funding, benefits, treatment and care for HIV can be blueprints for addressing Long COVID & associated diseases.

Speakers


Organizer

Fiona Lowenstein, Journalist And Speaker, Self-Employed


Meta Information:

  • Event: SXSW
  • Format: Panel
  • Track: Health & MedTech
  • Track 2
  • Level: Beginner


Add Comments

comments powered by Disqus

SXSW reserves the right to restrict access to or availability of comments related to PanelPicker proposals that it considers objectionable.