Dear Colleague, We are delighted to announce the publication of Volume 9, Issue 1 of the Journal of Huntington’s Disease (JHD). This issue contains seven research articles and one open access review. The full contents of this issue can be accessed from the list below, along with the most read JHD articles and details of two research studies published in JHD for which press releases were issued. If you are attending the CHDI conference in Palm Springs next week, we hope to see you at the JHD Drinks Reception! Read below for more details. Kind regards,
Editors-in-Chief | REVIEW ARTICLE
Systematic Review of Rehabilitation for Corticobulbar Symptoms in Adults with Huntington’s Disease – Open Access
Burnip, Emma | Wallace, Emma | Gozdzikowska, Kristin | Huckabee, Maggie-Lee RESEARCH ARTICLES
Transcriptional Assessment of Striatal mRNAs as Valid Biomarkers of Disease Progression in Three Mouse Models of Huntington’s Disease
Ghavami, Afshin | Olsen, Michael | Kwan, Mei | Beltran, Jose | Shea, John | Ramboz, Sylvie | Duan, Wenzhen | Lavery, Daniel | Howland, David | Park, Larry C. Correlations Between Mutant Huntingtin Aggregates and Behavioral Changes in R6/1 Mice
Cabanas, Magali | Piquemal, Marion | Pistono, Cristiana | Arnaud, Syndelle | Rakesh, Divyangana | Poinama, Elodie | Guillou, Jean-Louis | Garret, Maurice | Cho, Yoon H. Baseline Variables Associated with Functional Decline in 2CARE, A Randomized Clinical Trial in Huntington’s Disease
McGarry, Andrew | McDermott, Michael P. | Kieburtz, Karl | Peng, Jing | Cudkowicz, Merit | for the Huntington Study Group 2CARE Investigators and Coordinators Cognitive Screening Tests in Huntington Gene Mutation Carriers: Examining the Validity of the Mini-Mental State Examination and the Montreal Cognitive Assessment
Ringkøbing, Signe Pertou | Larsen, Ida Unmack | Jørgensen, Kasper | Vinther-Jensen, Tua | Vogel, Asmus A Longitudinal Wearable Sensor Study in Huntington’s Disease
_Dinesh, Karthik | Snyder, Christopher W. | Xiong, Mulin | Tarolli, Christopher G. | Sharma, Saloni | Dorsey, E. Ray | et al. Responsiveness to Change Over Time: An Examination of the Neuro-QoL Social Function Measures in Persons with Huntington’s Disease
Carlozzi, Noelle E. | Boileau, Nicholas R. | Hahn, Elizabeth A. | Barton, Stacey K. | Cella, David | McCormack, Michael K. | Ready, Rebecca E. Awareness of Chorea in Huntington’s Disease
Hergert, Danielle C. | Sanchez-Ramos, Juan | Cimino, Cynthia R. OTHER CONTENT
Upcoming Meetings Related to Huntington’s Disease – Openly Available | Most Read JHD Articles in January 2020 Listing articles published only in 2018 and 2019 so you can read the most popular recent content Huntington’s Disease Clinical Trials Corner: January 2019 – Openly Available (Clinical Trials Corner in Vol.8, Iss.1, 2019)
Rodrigues, Filipe B. | Quinn, Lori | Wild, Edward J. Clinical Management of Neuropsychiatric Symptoms of Huntington Disease: Expert-Based Consensus Guidelines on Agitation, Anxiety, Apathy, Psychosis and Sleep Disorders – Open Access (Research Article in Vol.7, Iss.4, 2018)
Anderson, Karen E. | van Duijn, Erik | Craufurd, David | Drazinic, Carolyn | Edmondson, Mary | Goodman, Nathan | van Kammen, Daniel | Loy, Clement | Priller, Josef | Goodman, LaVonne V. Age at Death and Causes of Death in Patients with Huntington Disease in Norway in 1986–2015 – Open Access (Research Article in Vol.8, Iss.1, 2019)
Solberg, Olga Karin | Filkuková, Petra | Frich, Jan C. | Feragen, Kristin J. Billaud Characterization of Neurodevelopmental Abnormalities in iPSC-Derived Striatal Cultures from Patients with Huntington’s Disease – Open Access (Research Article in Vol.8, Iss.3, 2019)
TMathkar, Pranav P. | Suresh, Divya | Dunn, James | Tom, Colton M. | Mattis, Virginia B. Therapeutic Use of Music, Dance, and Rhythmic Auditory Cueing for Patients with Huntington’s Disease – Open Access (Systematic Review in Vol.8, Iss.4, 2019)
Schwartz, Anna E. | van Walsem, Marleen R. | Brean, Are | Frich, Jan C. | In the News Recent press releases relating to recent JHD content | HD Patients Need Better Understanding of Risks and Benefits of Clinical Trials For HD patients, clinical trials can offer hope when there are no treatments available despite unknowns about whether the therapy will work or is safe. A new study found that although the HD community appears highly optimistic about research, patients are at risk for therapeutic misconception. In order to allay patients' misgivings, investigators recommend improvements to patient-doctor communication to better convey trial goals, risks and benefits. Open Access Study:
Positive Attitudes and Therapeutic Misconception Around Hypothetical Clinical Trial Participation in the HD Community Read the full press release here | CHDI Therapeutics Conference JHD Drinks Reception | Tue 25 Feb The 15th Annual HD Therapeutics Conference will begin on February 24 in Palm Springs, CA, USA. The program promises to cover all aspects of drug discovery related to Huntington's disease. JHD information will be available at the event, including print copies of our hot-off-the-press current issue, which will be available during the drinks reception on Tue 25 Feb in the Petanque Court (adjacent to the Ballroom). The reception begins around 17:30 after the science session concludes. All delegates are invited by JHD's Editors-in-Chief Blair R. Leavitt and Leslie M. Thompson to attend the journal's drinks reception. Please join us at the Parker Hotel to meet colleagues, share ideas, and make new connections in the pursuit of therapeutics for Huntington's disease. Print copies of the new issue of JHD will be available at the event! | Sign Ups & Social Media Help Spread the News of JHD! | If you know of any colleagues or fellow researchers who are not yet signed up to receive the newsletter, we invite you to share this mailing with them. Click on the sign-up link at the bottom of this email or access here. JHD also has a social media presence! why not take the time today to follow us on Twitter and find us on Facebook? Be part of the discussion! | You are receiving this mailing as you are signed up to receive news from JHD.
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